Skip to main content

Don't label people with Down syndrome

By David M. Perry, Special to CNN
November 17, 2012 -- Updated 1856 GMT (0256 HKT)
Perceptions about Down syndrome have changed in recent years, says David M. Perry, who has a son with this disability.
Perceptions about Down syndrome have changed in recent years, says David M. Perry, who has a son with this disability.
STORY HIGHLIGHTS
  • Ann Coulter's "retard" comment not aimed at Down syndrome, she said
  • David Perry has son with Down syndrome and says culture has come far in accepting disability
  • He says some call Down syndrome kids "angels" but that's little better than "retards"
  • Perry: We should see humanity of those with Down syndrome -- they're people, not syndromes

Editor's note: David M. Perry is an associate professor of history at Dominican University in River Forest, Illinois. His son, Nicholas Quillen Perry, has Down syndrome.

(CNN) -- "It breaks my heart to think how many people would not have chosen to keep that precious angel." -- Florida Attorney General Pam Bondi, speaking about abortion and Down syndrome at the 2012 National Convention.

"I highly approve of (Mitt) Romney's decision to be kind and gentle to the retard." -- Ann Coulter, tweeting about the third presidential debate.

"No one would call someone with Down syndrome 'retard.' I call you a 'retard.' " -- Coulter on Alan Colmes' Fox News Radio show.

David M. Perry
David M. Perry

Let's pretend that Ann Coulter is telling the truth in that last comment. Yes, she called President Barack Obama a retard, but at least she claimed she'd never insult someone with Down syndrome. Even if she's lying, we have come a long way. Children with Down syndrome still get bullied or even abused, and adults with any disability face an uncertain future, particularly in an era of austerity, but today few would call someone with Down syndrome a retard to his or her face.

For this, as the father of a boy with Down syndrome, I am grateful.

In fact, over the last 50 years or so, the lives of people with Down syndrome and other disabilities have improved in many remarkable ways. Most parents are now raising their children with Down syndrome in their homes rather than sending them to live in institutions. Government programs, especially through early intervention and special education, employ teachers and therapists who have helped these children learn beyond our wildest dreams.

Medical advances not only prevent many of the most dire threats to their health but begin to promise new treatments to make it easier for them to learn. Extended families, churches, community groups and nonprofits all work to support families such as mine.

Become a fan of CNNOpinion
Stay up to date on the latest opinion, analysis and conversations through social media. Join us at Facebook/CNNOpinion and follow us @CNNOpinion on Twitter. We welcome your ideas and comments.



And sometimes, when relatives or church members or kind strangers meet my son or hear that I have a boy with Down syndrome, they smile and tell me that "people with Downs" or "Downs kids" are God's angels sent down to earth. I smile and thank them and agree that people with Down syndrome can be pretty great.

But while good intentions count for a lot, "angel" makes me no happier than "retard." Most parents who have spent time changing diapers, dealing with tantrums or trying to get a sleepy child, with or without Down syndrome, ready for the school bus in time know that "angel" doesn't always cut it.

People talk about Down syndrome "special angels" or "hidden angels" across the Internet and media. Reece's Rainbow Adoption Ministry, an organization that does spectacular work finding homes for orphan children with Down syndrome, has an "angel tree" on its website, with pictures of children in need of adoption. The founder writes, "The beauty and innocence that a child with Down syndrome brings to the world is truly one of Divine nature." This is a little more complex than "angel," but the focus on innocence points in the same direction.

Ann Coulter's backward use of the 'r-word'

No human, including my son, is entirely innocent or angelic.

Symbols, labels and representations -- in media, literature and our daily conversations -- shape reality. The words "retard" and "angel" represent images that dehumanize and disempower. Both words connote two-dimensional, simple or limited people. Neither angels nor retards can live in the world with the rest of us, except as pets, charity cases or abstract sources of inspiration.

Special Olympian fires back at Coulter
Down syndrome girl crowned dance's queen
Pulling planes for Special Olympics

I am delighted to see the tide turn against the "r-word." After Coulter tweeted about the president, John Franklin Stephens, a man with Down syndrome, took to the Internet and to CNN. He argued that comparing the president to people such as him ought to be a "badge of honor" given the pathways he has forged through life's complex problems. The wave of support and publicity received by Stephens gives me hope for my son and for all of us who think our lives are improved by a society that includes everybody.

Language changes as knowledge and attitudes change. Doctors started using the word "retarded" to replace "Mongoloid Idiot." A lot of good came with that shift, because it indicated a new understanding that people with Down syndrome were not monstrously limited creatures best locked up in an institution.

Today, we talk about "developmentally delayed," and a lot of good has come with that shift, too. People see a child with developmental delays as having the potential to learn, to grow, to develop and to become a self-advocate.

And even Coulter, as a result, claims she would never call my son a retard. But other words will replace it. People will find new ways to use language to divide, to objectify and to dehumanize. The issue isn't language, not specific words, but representation.

My son is neither angel nor monster, just human. It's true that he's more confident in the world of empathy than of language. He reflects and intensifies the emotions of those around him. He meets love with even more love. These traits can be wonderful, and they're pretty typical of people with Down syndrome. But complex emotional lives define us as human, not angelic.

So let's listen to the rueful laughs of so many of my fellow parents who insist: "My child is no angel." Let's stand with Stephens as we fight against hate speech. Let's include people with developmental disabilities fully into our society. Most of all, let's always think of people with Down syndrome as people, first, not syndromes. Then the cruel words employed by clownish bigots will vanish into historical memory.

Follow us on Twitter @CNNOpinion.

Join us on Facebook/CNNOpinion.

The opinions expressed in this commentary are solely those of David M. Perry.

ADVERTISEMENT
Part of complete coverage on
October 28, 2014 -- Updated 1237 GMT (2037 HKT)
Errol Louis says forced to choose between narrow political advantage and the public good, the governors showed they are willing to take the easy way out over Ebola.
October 27, 2014 -- Updated 1803 GMT (0203 HKT)
Eric Liu says with our family and friends and neighbors, each one of us must decide what kind of civilization we expect in the United States. It's our responsibility to set tone and standards, with our laws and norms
October 27, 2014 -- Updated 1145 GMT (1945 HKT)
Sally Kohn says the UNC report highlights how some colleges exploit student athletes while offering little in return
October 26, 2014 -- Updated 1904 GMT (0304 HKT)
Terrorists don't represent Islam, but Muslims must step up efforts to counter some of the bigotry within the world of Islam, says Fareed Zakaria
October 24, 2014 -- Updated 1302 GMT (2102 HKT)
Scott Yates says extending Daylight Saving Time could save energy, reduce heart attacks and get you more sleep
October 27, 2014 -- Updated 0032 GMT (0832 HKT)
Reza Aslan says the interplay between beliefs and actions is a lot more complicated than critics of Islam portray
October 27, 2014 -- Updated 1119 GMT (1919 HKT)
Julian Zelizer says control of the Senate will be decided by a few close contests
October 24, 2014 -- Updated 1212 GMT (2012 HKT)
The response of some U.S. institutions that should know better to Ebola has been anything but inspiring, writes Idris Ayodeji Bello.
October 22, 2014 -- Updated 2101 GMT (0501 HKT)
Paul Callan says the grand jury is the right process to use to decide if charges should be brought against the police officer
October 23, 2014 -- Updated 1619 GMT (0019 HKT)
Theresa Brown says the Ebola crisis brought nurses into the national conversation on health care. They need to stay there.
October 21, 2014 -- Updated 2235 GMT (0635 HKT)
Patrick Hornbeck says don't buy the hype: The arguments the Vatican used in its interim report would have virtually guaranteed that same-sex couples remained second class citizens
October 24, 2014 -- Updated 1630 GMT (0030 HKT)
The Swedes will find sitting on the fence to be increasingly uncomfortable with Putin as next door neighbor, writes Gary Schmitt
October 24, 2014 -- Updated 1632 GMT (0032 HKT)
The Ottawa shooting pre-empted Malala's appearances in Canada, but her message to young people needs to be spread, writes Frida Ghitis
October 26, 2014 -- Updated 0148 GMT (0948 HKT)
Paul Begala says Iowa's U.S. Senate candidate, Joni Ernst, told NRA she has right to use gun to defend herself--even from the government. But shooting at officials is not what the Founders had in mind
October 23, 2014 -- Updated 2208 GMT (0608 HKT)
John Sutter: Why are we so surprised the head of a major international corporation learned another language?
October 23, 2014 -- Updated 2154 GMT (0554 HKT)
Jason Johnson says Ferguson isn't a downtrodden community rising up against the white oppressor, but it is looking for justice
October 24, 2014 -- Updated 1621 GMT (0021 HKT)
Sally Kohn says a video of little girls dressed as princesses using the F-word very loudly to condemn sexism is provocative. But is it exploitative?
October 21, 2014 -- Updated 2006 GMT (0406 HKT)
Timothy Stanley says Lewinsky is shamelessly playing the victim in her affair with Bill Clinton, humiliating Hillary Clinton again and aiding her critics
October 23, 2014 -- Updated 1414 GMT (2214 HKT)
Imagine being rescued from modern slavery, only to be charged with a crime, writes John Sutter
October 21, 2014 -- Updated 1600 GMT (0000 HKT)
Tidal flooding used to be a relatively rare occurrence along the East Coast. Not anymore, write Melanie Fitzpatrick and Erika Spanger-Siegfried.
October 21, 2014 -- Updated 1135 GMT (1935 HKT)
Carol Costello says activists, writers, politicians have begun discussing their abortions. But will that new approach make a difference on an old battleground?
October 21, 2014 -- Updated 1312 GMT (2112 HKT)
Sigrid Fry-Revere says the National Organ Transplant Act has caused more Americans to die waiting for an organ than died in both World Wars, Korea, Vietnam, Afghanistan and Iraq
ADVERTISEMENT