Skip to main content

Amputees never say 'I can't'

By Jothy Rosenberg, Special to CNN
April 24, 2013 -- Updated 1812 GMT (0212 HKT)
STORY HIGHLIGHTS
  • Jothy Rosenberg lost his leg at 16, an experience that some in Boston blast have had
  • He says it's horrible. And it's challenging physically to adjust, psychically even more difficult
  • But you can, he says. Sports mastery helps restore self-esteem
  • Rosenberg: Those hurt can excel far beyond what they imagine. Don't accept "can't"

Editor's note: Jothy Rosenberg is the author of the memoir "Who Says I Can't?" He is a serial entrepreneur in the high-tech industry, has written three technical books, is an extreme athlete in skiing, biking and open water swimming and is about to do his 20th Alcatraz swim across San Francisco Bay. Watch his "Who Says I Can't?" series on YouTube, and follow him on Twitter

(CNN) -- Waking up to realize you suddenly have no leg or legs is as horrible an experience as one can have, and one that will, sadly, be faced by a number of people injured in the bombing of the Boston Marathon. It happened to me when I was 16 after a bone cancer diagnosis and amputation (the cancer later spread to my lung and caused a lung to be removed as well). As I looked down in the recovery room to where my right leg used to be, all I saw was a short stump.

This is frightening for sure, and only one of the things you're dealing with after an amputation. Luckily perhaps, your entire being is consumed just with healing; the bigger issues come later. First thing to deal with is massive physical pain from the surgery, and it will be worse because of the shrapnel packed bombs. The explosive force traumatizes the tissues and the fragments injected into the body cause collateral damage. Modern medicine does well with pain management, so this phase will, luckily, pass quickly.

Jothy Rosenberg
Jothy Rosenberg

For the new amputee, challenges come fast and furious, but so does the natural "fight" that is in all humans. My very first challenge was trying to stand on one leg. The body and the mind do not adjust immediately to major changes like the loss of a 25 pound leg, so balance while standing up is elusive. But it will come and that is a first little victory. It's the first of many little accomplishments that begin to build up one's zeroed-out self-confidence. Our bodies heal and adapt well--the mind is a bigger challenge.

Someone newly disabled naturally has thoughts of "why me?" as well as feelings of loss, despair and even depression. As John Green wrote in a wonderful book called "The Fault in Our Stars," about a boy who lost his leg to cancer, "You don't get to choose if you get hurt in this world." Bad things happen and all we can do is adapt and move forward.

Terrorists make us lose sight of the real dangers

Become a fan of CNNOpinion
Stay up to date on the latest opinion, analysis and conversations through social media. Join us at Facebook/CNNOpinion and follow us @CNNOpinion on Twitter. We welcome your ideas and comments.



We are pretty attached to all our body parts, so of course there is a sense of loss. People don't study ahead for how they will deal with every possible eventuality that affects the trajectory of their lives. This new horrible reality of being disabled is a shock. There is fear of the unknown. What will I be able to do? How do I get back to normal? Will people stare at me because I look different? And it is easy to imagine how this leads to the tar-pit of self-pity. But that is not what happens to most people and it won't happen with the Boston Marathon bombing survivors.

Compared with the primitive prosthetics of my youth, modern prosthetics are technological marvels. It is surprising to most people, but prosthetics' most important role is not ambulation: They are a social device to "level the playing field" and allow others to see you as not different. Today's computerized knees keep people from falling (with mine, I have gone seven years without a fall; before that, for 33 years it happened once a week). They cut energy use for walking in half, and allow normal stair walking. But there is a down side. A computerized above-knee prosthesis is between $50,000 and $60,000, of which the best insurance companies typically pay about 80%. That can be $12,000 out of pocket. This is where we can help the new Boston Marathon amputees.

New normal, new mission for amputees
The people who saved others in Boston
Finish line becomes like war zone
'I wanted to see you finish that thing'

Opinion: Getting on with life after terror hits

By far the biggest long-term issue for anyone knocked down in life is the loss of self-esteem. Humans require strong self-esteem for a healthy, happy life. As Gloria Steinem said, "Self-esteem isn't everything, it's just that there is nothing without it." She's right. Building back the lost self-esteem is the hardest and most important challenge for the newly disabled. How does one do it? I found that sports were key.

I liked sports and, of course, physical activity was good for me. Pick something you like. Focus. Work hard at it. Work harder than anyone else. You can't help but get good at it. That feels good. That makes you want to work even harder. You keep getting better and better at it and then others stop saying you are pretty good, considering you only have one leg, and start respecting you. You've won and your self-esteem rises and takes your happiness up with it.

I started with skiing, which at first was more "turn, fall, get up, turn, fall, get up" than swooshing down the slopes. Now I am a double-black diamond (amputee) skier. I tried biking and every year join a 200-mile bike-a-thon. I added swimming and in May will do my 20th "Alcatraz Sharkfest" swim across San Francisco Bay.

Crystal legs and snake arms: Artificial limbs as art

The natural challenge-response we all have in us is what will be the biggest help to the new amputees. It goes like this: "You can't run with one leg." Says the amputee, "Who says I can't?!" and he or she will be off and running. We know that those with so-called disabilities don't fall into the pity tar-pit and in fact, do better than they or anyone around them ever thought possible. Some even excel far beyond what they had ever accomplished before they became "differently abled."

Richard Bruno studied polio survivors in the '80s and wrote in "The Polio Paradox," "Polio survivors who were told they would never go to college or get a job became the country's best and brightest." Like who, you might ask? President Franklin Delano Roosevelt, Johnny Weissmuller, Judy Collins, Jack Nicklaus, Dinah Shore, Alan Alda, Joni Mitchell and many more.

These polio survivors had significant physical problems but refused the label disabled, and never accepted the word "can't." To them, to me, and I predict to these bombing survivors, disability is simply "different ability"; and just you watch, maybe even "superability." Who says they can't?

Follow @CNNOpinion on Twitter.

Join us at Facebook/CNNOpinion.

The opinions expressed in this commentary are solely those of Jothy Rosenberg.

ADVERTISEMENT
Part of complete coverage on
December 25, 2014 -- Updated 0633 GMT (1433 HKT)
Danny Cevallos says the legislature didn't have to get involved in regulating how people greet each other
December 23, 2014 -- Updated 2312 GMT (0712 HKT)
Marc Harrold suggests a way to move forward after the deaths of NYPD officers Wenjian Liu and Rafael Ramos.
December 24, 2014 -- Updated 1336 GMT (2136 HKT)
Simon Moya-Smith says Mah-hi-vist Goodblanket, who was killed by law enforcement officers, deserves justice.
December 24, 2014 -- Updated 1914 GMT (0314 HKT)
Val Lauder says that for 1,700 years, people have been debating when, and how, to celebrate Christmas
December 23, 2014 -- Updated 2027 GMT (0427 HKT)
Raphael Sperry says architects should change their ethics code to ban involvement in designing torture chambers
December 24, 2014 -- Updated 0335 GMT (1135 HKT)
Paul Callan says Sony is right to call for blocking the tweeting of private emails stolen by hackers
December 23, 2014 -- Updated 1257 GMT (2057 HKT)
As Christmas arrives, eyes turn naturally toward Bethlehem. But have we got our history of Christmas right? Jay Parini explores.
December 23, 2014 -- Updated 0429 GMT (1229 HKT)
The late Joe Cocker somehow found himself among the rock 'n' roll aristocracy who showed up in Woodstock to help administer a collective blessing upon a generation.
December 23, 2014 -- Updated 2115 GMT (0515 HKT)
History may not judge Obama kindly on Syria or even Iraq. But for a lame duck president, he seems to have quacking left to do, says Aaron Miller.
December 23, 2014 -- Updated 1811 GMT (0211 HKT)
Terrorism and WMD -- it's easy to understand why these consistently make the headlines. But small arms can be devastating too, says Rachel Stohl.
December 22, 2014 -- Updated 1808 GMT (0208 HKT)
Ever since "Bridge-gate" threatened to derail Chris Christie's chances for 2016, Jeb Bush has been hinting he might run. Julian Zelizer looks at why he could win.
December 20, 2014 -- Updated 1853 GMT (0253 HKT)
New York's decision to ban hydraulic fracturing was more about politics than good environmental policy, argues Jeremy Carl.
December 20, 2014 -- Updated 2019 GMT (0419 HKT)
On perhaps this year's most compelling drama, the credits have yet to roll. But we still need to learn some cyber lessons to protect America, suggest John McCain.
December 22, 2014 -- Updated 2239 GMT (0639 HKT)
Conservatives know easing the trade embargo with Cuba is good for America. They should just admit it, says Fareed Zakaria.
December 20, 2014 -- Updated 0112 GMT (0912 HKT)
We're a world away from Pakistan in geography, but not in sentiment, writes Donna Brazile.
December 19, 2014 -- Updated 1709 GMT (0109 HKT)
How about a world where we have murderers but no murders? The police still chase down criminals who commit murder, we have trials and justice is handed out...but no one dies.
December 18, 2014 -- Updated 2345 GMT (0745 HKT)
The U.S. must respond to North Korea's alleged hacking of Sony, says Christian Whiton. Failing to do so will only embolden it.
December 19, 2014 -- Updated 2134 GMT (0534 HKT)
President Obama has been flexing his executive muscles lately despite Democrat's losses, writes Gloria Borger
December 18, 2014 -- Updated 1951 GMT (0351 HKT)
Jeff Yang says the film industry's surrender will have lasting implications.
December 18, 2014 -- Updated 2113 GMT (0513 HKT)
Newt Gingrich: No one should underestimate the historic importance of the collapse of American defenses in the Sony Pictures attack.
December 10, 2014 -- Updated 1255 GMT (2055 HKT)
Dean Obeidallah asks how the genuine Stephen Colbert will do, compared to "Stephen Colbert"
December 18, 2014 -- Updated 1734 GMT (0134 HKT)
Some GOP politicians want drug tests for welfare recipients; Eric Liu says bailed-out execs should get equal treatment
December 18, 2014 -- Updated 1342 GMT (2142 HKT)
Louis Perez: Obama introduced a long-absent element of lucidity into U.S. policy on Cuba.
December 16, 2014 -- Updated 1740 GMT (0140 HKT)
The slaughter of more than 130 children by the Pakistani Taliban may prove as pivotal to Pakistan's security policy as the 9/11 attacks were for the U.S., says Peter Bergen.
ADVERTISEMENT