Physically challenged and fashionable

Story highlights

  • Patients who use external medical devises can have difficulty dressing around them
  • Insulin pumps, colostomy bags and tracheotomies can limit clothing choices
  • People who require the devices have created stylish accessories for them
  • Online forums give people who need these devices to survive ideas and fashion options
Scan any well-stocked newsstand, and you'll no doubt find a bounty of women's magazines touting tips for achieving bouncy hair, kissable lips and a cellulite-free derriere.
What you won't see are headlines hyping haute insulin pumps, artful colostomy pouches or flirty tracheostomy covers. Meanwhile, there are countless women dealing with the daily challenge of feeling beautiful while tethered to a device that's necessary to stay alive, but often unlovely to look at.
In decades past, people with external medical appliances were sentenced to life of voluminous "clown clothes" (as one ileostomy wearer puts it) and counseled to hide their conditions as best they could. But in this golden age of Internet community, designers and patients are taking matters into their own hands to create clothing and accessories that help women feel gorgeous in their own skin -- and spark conversation about a previously taboo topic.
The secret surgery
In 1990, Leah Humphries went to sleep as a carefree young woman and woke up with a hole punched in her gut and a pouch strapped to it. The 22-year-old art student had been diagnosed with Crohn's disease 20 months earlier and checked into the hospital for colon surgery she hoped would bring some relief. The disease ended up being more severe than anyone had anticipated, and the surgeons re-routed her small intestine out through an angry red opening -- a permanent "stoma" -- on her abdomen. While the ileostomy may have saved her body, it crushed her soul.
For a year, Humphries spiraled into sadness. She'd always been a free-spirited, active, pretty girl, yet she suddenly found herself keeping company with other ostomy patients many decades her senior. They were content to while away afternoons shooting the breeze, tented in loose, flowing clothes calculated to conceal the existence of a pouch full of their waste and never talking about the more private aspects of their condition.
It was called the "secret surgery" for a reason. Many ostomates at the time were unwilling to discuss the social issues surrounding the mechanics of their device (which have improved radically since then), and the prevailing image was, as Humphries said, "Grandpa had the bag, and you kept him in the corner, and he smelled."
"I was so appalled at the way I looked, and I didn't want anyone else feeling sorry for me," she recalled. Humphries hid the fact of her surgery from most of the people around her, until one day she received a call from her ostomy nurse. There was another young patient having a rough time with her transition, and she needed to know that her life as a woman wasn't over.
Humphries shared the tricks she had picked up -- including wearing control-top stockings to minimize the outline of the pouch in form-fitting clothes -- and found a little something for herself: a purpose.
Now 44, as a mentor and public speaker, Humphries works to dispel myths about life with an ostomy ("A lot of people think they can't even go swimming in the pool!") and instill a message of positive body image to women struggling to feel whole again.
After her first marriage (an "ostomy-based decision," she says, that kept her in an unhappy relationship because she feared that no one else would want her) ended, Humphries faced the awkward possibility of having to bare her medical appliance to a new partner. But rather than shrouding herself in a full-length nightgown or relying on high-waisted, split-crotch underwear preferred by many female ostomates, she came up with an innovative solution: a heart-shaped pouch cover that looks like a piece of lingerie rather than camouflage.
Humphries, who married again and now has a 14-year-old son, works as a designer and branding expert and markets My Heart Ties as "The world's most beautiful ostomy cover." She encourages wearers to regain their