The smallest patients – Connor Wilson was born February 13, 2012. He had his first surgery at Kentucky Children's Hospital a week later and a second surgery on May 11. On August 3, 2012, his heart stopped, but doctors got it beating again. "He never got better," says his mother, Nikki Crew.
Connor Wilson – Connor's parents say while they were in the hospital, they asked staff multiple times for information about survival rates, but never got answers.
Connor Wilson – Connor passed away on August 30, 2012. In October, Kentucky Children's stopped doing heart surgeries. Dr. Michael Karpf, executive vice president for health affairs at the University of Kentucky's health care system, said he put the pediatric heart surgery program on hold because the mortality rates weren't what he wanted them to be.
The smallest patients – Waylon Rainey was born September 13, 2012, with a severe heart defect and underwent a 12-hour surgery at Kentucky Children's Hospital when he was a week old.
Waylon Rainey – After surgery, Waylon's chest was so swollen it was left open for two weeks. For months, he suffered seizures and multiple brain bleeds, his parents say. Waylon's mother Tabitha Rainey says a cardiologist privately suggested that Waylon would do better at another hospital. He was transferred to the University of Michigan and survived after undergoing additional procedures.
The smallest patients – Jaxon Russell was born September 26, 2012. On October 2, he had his first surgery at Kentucky Children's to fix a congenital heart defect.
Jaxon Russell – Jaxon had a second surgery on February 5 at a different hospital. His parents say it lasted four hours longer than expected because of an infection and scar tissue from the first surgery. "The first surgery was botched," his father, Shannon, says.
Rayshawn Lewis-Smith – Rayshawn Lewis-Smith was born with congenital heart defects, requiring 10 surgeries at Kentucky Children's Hospital before he was 6 months old. Rayshawn's mother, Joequetta Lewis, created the Facebook page "Prayers for Rayshawn" to share the ups and downs of her "little warrior."