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After experimental treatment, 24-year-old is learning how to live

By Ashley Strickland, CNN

Updated 0112 GMT (0912 HKT) December 19, 2015

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Sarah Hughes, right, and her mother, Fiona, have endured 24 years of Sarah's struggle with systemic juvenile idiopathic arthritis, a debilitating autoimmune disease. But a new treatment has given her another chance at life. Click through our gallery to learn more about Sarah's journey.
Photos: Learning to live
Sarah Hughes, right, and her mother, Fiona, have endured 24 years of Sarah's struggle with systemic juvenile idiopathic arthritis, a debilitating autoimmune disease. But a new treatment has given her another chance at life. Click through our gallery to learn more about Sarah's journey.
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Fiona's twin, Sarah Jane (left), was only 8 when she was told that she would die prematurely from juvenile arthritis, but her symptoms didn't take a turn for the worse until she was 20. Growing up, Fiona shared a bedroom with Sarah Jane and was scared to sleep at night because her twin suffered from seizures. Instead, she would stay awake and keep watch.
Photos: Learning to live
Fiona's twin, Sarah Jane (left), was only 8 when she was told that she would die prematurely from juvenile arthritis, but her symptoms didn't take a turn for the worse until she was 20. Growing up, Fiona shared a bedroom with Sarah Jane and was scared to sleep at night because her twin suffered from seizures. Instead, she would stay awake and keep watch.
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This was the last birthday together for the twins before Sarah Jane died. Also pictured are Sarah (right, with Fiona) and Sarah Jane's daughter, Allison (left).<br />
Photos: Learning to live
This was the last birthday together for the twins before Sarah Jane died. Also pictured are Sarah (right, with Fiona) and Sarah Jane's daughter, Allison (left).
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Sarah was diagnosed with juvenile arthritis in 1992, when she was 11 months old. In this photo, Sarah was finally learning to walk braces.
Photos: Learning to live
Sarah was diagnosed with juvenile arthritis in 1992, when she was 11 months old. In this photo, Sarah was finally learning to walk braces.
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Sarah's vertebrae at the base of the skull were attacked by her arthritis at an early age. At 7, she wore a neck brace for support.<br />
Photos: Learning to live
Sarah's vertebrae at the base of the skull were attacked by her arthritis at an early age. At 7, she wore a neck brace for support.
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Sarah struggled to make friends because other students teased her about her medical issues. She would come home and read stories to her pony, Georgie Porgy, because he never made her feel different or judged.
Photos: Learning to live
Sarah struggled to make friends because other students teased her about her medical issues. She would come home and read stories to her pony, Georgie Porgy, because he never made her feel different or judged.
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Sarah has spent much of her life in hospitals, receiving chemotherapy and treatments to help her condition. She credits her doctors with keeping her alive into her 20s.
Photos: Learning to