What happens when a patient says, 'Doc, help me die'

Updated 1149 GMT (1949 HKT) March 20, 2018

This piece is the third part of a CNN Opinion series, "What it's like to be me," which explores the personal struggles Americans face at a time of profound social change. E. Wesley Ely is a physician and the Grant. W. Liddle Professor of Medicine and Critical Care at Vanderbilt University, Tennessee Valley VA GRECC, and the founder of the Vanderbilt ICU Delirium and Cognitive Impairment Study Group. The views expressed here are solely his.

(CNN)"But can't you help me die, Doc?"

My 54-year-old patient was alone in the intensive care unit, with no family or friends in his life. He slumped in his bed, gasping, staring up at me. Admitted with lung fibrosis and pneumonia, he had scars and infection aggressively replacing his airways, despite our best treatments.
E. Wes Ely
As a newly minted doctor years ago, my mind was usually occupied with beeps and buzzers providing me technical information to help calculate choices about patients' care. Having developed gray hair over many years at the bedside, my first priority is now more straightforward: to hear the voices of the vulnerable people looking up at me from their bed. That is what I try to do as a physician, including, of course, what they tell me in the silences.
I pulled a chair next to his bed so we could talk at eye level. His face was blank. "I want euthanasia. I'm going to die soon, so what's the point of living longer? I'm just wasted space."
I felt nauseated. The illegality of euthanasia was not what ran through my mind. Instead I thought about how Paul had lost his sense of personhood. I thought about how I had chosen to become a doctor in the first place.
Caregiving is a partnership

Share your story of how being a caregiver has changed you with #ToBeMe or text/WhatsApp us on +1-347-322-0415

I chose medicine as my calling after a childhood spent in the Deep South: Shreveport, Louisiana. My mother taught English there after my father, an engineer, had left her for another woman. I remember it was so hot that my siblings and I would fry eggs on the sidewalk. No joke. On most days, we'd walk to a nearby bayou and catch baby alligators for fun and fill up coolers with crawfish for dinner. That last part is important because we had no money at all. Dad wouldn't pay anything to Mom, who didn't make much as a teacher. So I started working at the farm of a man who wanted to marry my mother. I worked 14-hour days from about five in the morning doing square bales of hay until seven at night picking vegetables and running the country store.
While I cherish those years and the formation that grueling work provided, I was determined to do something different with my life. Mom told me that Dad had loved math and science, and she taught literature. So I figured it must come naturally for me to split the difference and do something with people, science and the arts. To me, that meant medicine.
Dr. Wes Ely assessing a patient in the Medical Intensive Care Unit at Vanderbilt.
I remember our first big assignment in sixth grade was to write a research paper on what we would be when we grew up. I rode my beat-up bicycle to the local library and began reading about how to become a physician: What was the process and what would it all mean? I walked out of the library that day having spent most of my time reading a long medical essay about truth. The author insisted that to be a physician, one has constantly to seek truth about the patient's diagnosis, the best treatment, and the best way to serve each and every person. What I learned from the essay was that truth doesn't change depending on our ability to stomach it. As I progressed through Jesuit high school and Tulane, this became a common theme in my pursuit of a life as a doctor: "Wrong is wrong even if everybody is wrong. Right is right even if nobody is right." Numerous people are credited with some version of this quote, from actors to philosophers to theologians. That sense of truth drove my study and training and my realization that each person's life has value beyond measure.
I knew long before I met Paul that I couldn't kill another person just because he or she wanted me to, but I still had to find a way to respond to Paul's request to die.

'Just don't abandon me'

My response came in parts over my days with him. First, I explained that, as his physician, I wanted to be with him through the dying process. I told him that I considered us to be in a mutual covenant. We both had a degree of autonomy that had to be respected, but I would never intentionally harm him. "Paul, our covenant includes my limiting your suffering," I said. "You are the best judge of when you need more meds for pain, anxiety and breathing. All of us will work day and night to end your distress, but we won't deliberately end your life."
With our eyes locked, Paul gave his instruction: "Just don't abandon me." And we sat there, as partners.
As a physician, there is no better place to be. Perhaps especially amid the uncertainty, we must learn to partner with each person in the bonds of this two-way relationship. He in need of help and me in need of helping.
Paul was receiving excellent palliative care for his physical symptoms, but it wasn't enough. It never is. Emotional isolation and despair can cast a shadow darker than disease. Physicians fail our patients on a human level. We forget that our patients are more than the sum of their medical conditions, so I asked Paul about other types of therapy — art, music, spirituality, pets, sunshine — that might help him.

'He who has a "why" to live can bear almost any "how"'

"I want my music. Can you get me the soundtrack for 'Lord of the Rings'?" Within minutes we had the songs playing in his room, and his demeanor changed from desolate to alert and engaged. "I love music. It's always been a motivator, but now ... I don't know." He shifted in his bed. "My goals are gone."
Nietzsche's words came to my mind, "He who has a 'why' to live can bear almost any 'how.'"
Viktor Frankl, as a physician-survivor of Auschwitz, used Nietzsche's quote four times in his crucial analysis, "Man's Search for Meaning." I think this book should be required reading for medical students.