He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son

Updated 1502 GMT (2302 HKT) May 13, 2019

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(CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son's bedroom for a subtle signal that it's all right to come in.

He opens the door to the space where Whitney has spent most of the last decade.
Whitney lies motionless on a simple bed, his head shaved and his frame emaciated. He's fed by a tube directly into his stomach. His lips haven't uttered a word in five years.
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