Paris (CNN)A French man with an incurable illness who unsuccessfully lobbied President Emmanuel Macron to allow him to die by "active medical assistance" says he is planning to live stream his own death on Facebook.
'Death should be democratic': Why this ill French man plans to live stream his dying days
Alain Cocq, 57, from Dijon in eastern France, has a rare incurable medical condition that causes his arteries to stick together.
He estimates he will only have days to live after stopping all medication, food and drink, which he plans to do Friday at 11 p.m. (6 p.m. ET).
Euthanasia is illegal in France. French law also dictates that deep and continuous sedation, which can hasten a person's death and render them unconscious until they die, is not legal unless under specific circumstances set out by the 2016 Claeys-Leonetti Law, which also requires a person's death to be imminent. But French citizens do have the right to stop medical care, and under French law there is no prosecution for suicide.
Cocq, who is confined to a wheelchair and founded an organization to improve the lives of disabled people, wrote a letter to Macron dated July 20 asking the President to allow him to die "with dignity," describing his "extremely violent suffering."
"I would like to make it clear to you that on this day I find myself in a situation of having on sound mind, confined in a dysfunctional body, crippled by suffering," he wrote in the letter, which has been seen by CNN.
"Would you withstand, Mr President, having your intestines emptied into a pouch, having your bladder emptied into a pouch and that you are fed by a pouch, that a third party must bathe you, to be crippled by unbearable pain?" Cocq wrote in the letter.
Cocq urged Macron to review French laws that prevent health care professionals from hastening the deaths of their dying patients with medicine.
"I simply ask to leave with dignity, with active medical assistance, because my dysfunctional body prevents me from doing so surrounded by my family and my friends," he wrote.
"Some use the term 'active euthanasia' or 'assisted suicide,' but for me the term most suitable is 'end of life with dignity with active medical assistance,'" he wrote.
Writing in response, President Macron said he was "moved" by Cocq's letter and admired the "remarkable willpower" he had shown in fighting "incessant battles" with the illness.
However, he said